Hold on tight a little longer

So, here we are…less than a week away from Jonathan’s birth. There are so many things I wanted to write about, so many things I wanted to say and do before we made it here, but alas, here we are.

In actuality I’m pretty impressed that I haven’t gone in to labor yet as two of my babies arrived early. I did however have one “due date baby” who was nearly 8lbs so I’ve been praying Jonathan will follow down that path. The longer he stays put, the bigger he can grow, and the better off he will be for surgery. We are anticipating his arrival by the end of the week and open heart surgery (The Norwood Procedure) early next week.

Are we prepared for this? Absolutely not. Would we ever be prepared for this even if we had all the time in the world? I doubt it.

Some of this morning’s final preparations have included time on the phone trying to find some extra help for respite care for Ethan. We’re also working on finding someone who can complete a neuropsych eval on a nonverbal, developmentally delayed teenager as well as a psychiatrist who is able to see him. If anyone has any recommendations please, please contact me!

I have also been contacting various friends and acquaintances, to coordinate child care for my little guys. Thank you to everyone who has offered to try to be available if we find ourselves in a pinch!

We have been very fortunate to have found a nice home to stay in while we’re here in Denver. The boys are still adjusting to being in about 1/3 of the space they’re accustomed to and the downstairs neighbor has been more than gracious in tolerating their “cabin fever” and general little boy rambunctiousness.
We miss our New Life family who have been such a community of support but have found a “home away from home” with the Novation Church family. They have surely demonstrated what it truly means to be a “church.” In addition to friends and family, Dan’s employer and “work family” has been amazingly supportive and understanding of our situation during this time as well. We have truly been blessed by our “village.”

If you feel led to keep us in prayer our requests include:

  • Complete and total healing for Ethan,
    Jonathan‘s heart,
    and Josiah‘s kidney
  • Safe labor and delivery
  • Health for whole family – if anyone is sick they will not be able to see Jonathan and I want my boys to meet their brother before he undergoes surgery (in fact anyone who is not up-to-date on vaccinations, especially TDAP/DTAP will not be able to see Jonathan in the foreseeable future due to the risk to his life should he contract a respiratory infection)
  • Wisdom for the surgeon, doctors, and nurses
  • Blessings on everyone who has been and will be caring for my children (especially my family who has been caring for Ethan)
  • Additional resources and care for Ethan
  • Peace for the entire family (me, D, our boys, grandparents, aunts, uncles)
  • Safe and healthy labor and delivery for Jonathan’s cousin who is due to be born the same day as Jonathan!

We have created a facebook page to help us quickly provide updates once Jonathan arrives
Jonathan’s Journey

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Author: ChristinaF

Boy Mom. Hospice Nurse. Adventure pants worn daily.

2 thoughts on “Hold on tight a little longer”

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